Before
“Rainman,” before TV networks enlightened us with riveting tales of human
strength and courage, before autism became a household word finally stripped of
our tendency to fear the unknown, autistic children didn’t have a medical or
physical condition (autism was a diagnosis in the 50’s but one reason David’s
mother did not have him diagnosed is because he would have been institutionalized)
They were dysfunctional, or lazy, or stupid, or worse yet – troublemakers
requiring a heavy hand to keep them in line, maybe even insane, but they
weren’t autistic. And they certainly weren’t geniuses trying to process a world
bent on shoving them in to institutions where they couldn’t disrupt our flower
garden viewpoint of how life should be.
David
Patten survived our failure to understand. Though we locked him away in
an experimental facility (they treated him as if he had schizophrenia), he
survived. And though dyslexia had joined with his autism to render him
functionally illiterate, David found a way to communicate so the world could
understand he had something to say.
“Dummy:
A Memoir” is a frank and honest look inside the mind of a man who refused to
accept the predetermined role society had allocated for him. It is also a
mirror of the external struggles we created for him. Teamed with developmental
editor Doug Childers, the duo used technology to transfer David’s words to
paper for editing, and then from paper back to sound so David could give final
approval of each and every fragment of the book. The result is a stirring tale
of a human spirit who transformed disability into skills and ultimately found
freedom.
Now
a husband and father, David resides in Hawaii with his wife. I want to thank
Megan McFeely for bringing David’s story to my attention, and for her
assistance with this interview.
Q)
Why was telling your story so important to you?
A)
I started writing about my life only for myself. I needed to externalize my experience, put it
on paper, so that I could inspect it in great detail. There was a deep
disturbance inside and my life was not working well. So I decided to search for
the core of that angst though writing hoping I could somehow free myself. I
felt a compulsion to write this…it was a very important step in my life.
Q)
From concept to conclusion, writing your book took seven years. Did you ever
consider giving up?
A)
My mind was constantly chattering. All these thoughts would run around in my head
about who I was, what I had done or not done or how well I had done it. There
was constant evaluation and it felt like the only way to stop my mind was with
logic. I wrote it all down and followed the internal arguments and criticisms
to their ultimate conclusion. With each scenario or experience of my life I
would ask it were true? Or if it just was an idea that my mind had? And through
this process I found a way to free myself from ideas that I had about who I was
or should be.
Writing
this book was my life’s focus for a while. It was the only thing that made
sense to me.
So
even though there were times I wanted to give up. I could not.
Q)
Your genius in abstract conceptual mathematics led you to become a successful
and sought after technician who debugged computers for corporations and the
military. To reach that success there had to be a starting point. How did you
convince the doubters of your capabilities?
A)
Well I knew I had to get a piece of paper that would be respected by the
culture. I got an AA degree because Department of Rehabilitation had a program
that enabled me to get my books read and tape-recorded. I was then hired
through a verbal interview process and then it was just a matter of job
performance. One thing I learned in college that served me well for years, is
the logic of trouble-shooting. I had an
innate understanding of how things worked and when I had to “do” or fix
something, I excelled.
Q)
As an autism-spectrum child now an adult, you have witnessed firsthand the
change in society’s viewpoint of autism. Obviously, we have a long way to go.
I’m curious as to how you view TV shows like “Touch” and movies that
sensationalize autism. Are they beneficial to understanding, or a hindrance?
A)
I am not all that familiar with the TV shows, but I imagine they both mislead
and clarify. Certainly they make the condition of Autism Spectrum less
freighting or foreign to others, which probably leads to acceptance and less
isolation for those who are diagnosed. But it is the viewpoints of many so-called
experts that I feel are misleading. In my experience they treat autism like it
is a disease, but it is not. I believe that most of what we think of autism is
a system overwhelm that is caused by reaction to a whole host of biological
issues. The triggers, circumstances and symptoms in each person are unique.
Q)
Though we’re learning, society in general is unaware autism covers a wide range
of levels, not just the extremes. And, while we tend to focus on the child, the
stress and difficulties imposed on parents is often overlooked and/or
understated. What advice can you offer parents?
A)
I think acceptance of the situation is a really important first step. It is not
easy, but the more you fight the situation (why me?) the more stress it causes
all parties. I also think that if
parents focus their attention on discovering and minimizing what is most
overwhelming/stressful in the environment, a more serene setting can be created
so that both the parents and child can have some relief.
Q)
Any parting comments for potential readers?
A)
Do the best you can do…no more, no less and accept your circumstances…
Let
your humanity be your guide.
DA Kentner is an
award-winning author www.kevad.net
What a message of hope and encouragement for all of us. When we judge ourselves by others' standards, we're the biggest loser. Thanks for sharing David's story.
ReplyDeleteHi Margie,
ReplyDeleteThank you for dropping by. David is an amazing man.